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Facing genetic defect, many reject testing

EXETER, England, Feb. 13 (UPI) -- People facing possible genetic defects "avoid pregnancy" rather than undergo prenatal testing, a British researcher says.

University of Exeter researcher Dr. Susan Kelly calls this deep-seated ambivalence about the options available to would-be parents as "choosing not to choose" and says it is not a simple rejection of medical intervention, opposition to abortion or affirmation of a positive parenting experience with a child already born with a genetic problem. It is also a desire for more control by parents who have a heightened sense of the limitations of new reproductive technologies, Kelly says.

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Kelly's study, published in the journal Sociology of Health and Illness, finds more than two-thirds of parents with a child already affected by a genetic problem -- all U.S. clients of a state-wide rural genetic outreach program -- chose not to have any more children rather than accept tests to identify or to avoid the birth of an affected child. Of the parents who did have further children, a majority chose not to make use of prenatal screening or testing.

"Prenatal testing procedures -- to detect genetic conditions or fetal anomalies -- were perceived by many parents as presenting rather than resolving risks," Kelly says in a statement.

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